I can’t beleive how well I’m doing running on no sleep. I amaze myself.
It took a long time to regulate pain today. He was dying mostly all night and all morning. He was in a really bad place and I couldn’t do anything for him. It was horrible. He just kept telling me ‘you don’t understand-it hurts immensly, immense pain” etc. Really hard to not be able to help. We just did a roller coaster since every time he would get comfortable the pain would start back again.
Finally around 1pm we got to give him the same medicine he was getting 2 days ago, before the surgery. (roxycodone, and oxycotin) and he got to keep the ‘pain button’. That helped his pain level to a point that he should have been ok, but he was fighting it hard. He wasn’t letting himself fall asleep and relax. I could get him to relax enough to sleep for about 10 minutes, but then he’d be awake and wanting rearranged again. I’m all about making him comfortable, but he needs to let the medicine to it’s job and try to not focus on the pain so much. Around 3pm they were able to give him an anti-anxiety drug. I’m not sure if the extra medicine put him to sleep, or he was finally able to relax enough, but he was out of it for a couple hours, so I finally felt comfortable leaving. I wasn’t sure what I was going to do tonight-I knew I wasn’t going to be able to leave him like he was this morning, so I’m really thankful we were able to get that worked out. His mom and Dad were staying later and going to make sure he was still comfortable after shift change then go home.
My kids were so happy to see me and play. They have missed me a lot, so we had some fun tonight since I left the hospital earlier than I usually do. I miss them a lot. They are so fun.
I am still daily amazed at how thoughtful and generous people are being. I’m keeping track and I will be sending out thank you cards. You all mean so much to us. Even the fact that so many are reading this blog-it’s been important to me to know that people really do care about us. Thanks.
No pictures today, I was tired, he was out of it, and nothing new happened.