Susan came out this morning to look at the house. She said it is better than she thought it would be. (yay!) She said she thinks the easiest way into the backyard would be through the garage, there is only one stair there. It’s a 9 inch rise so she said it would need a 9 foot ramp, and I asked if it was required to have it be ADA requirements for them to authorize it. He doesn’t need a 9 foot ramp for that drop-just a waste of space! and she said that is ok. Good! Not that I necessarily care about that particular ramp, but it is good to know that it’s not required for them to have it all according to ADA rules. She said that she would want to put in a lift on the entry stairs-just to make him more independent. It would be hard for me to get him in and out and having a lift. I hate having them pay for that because he isn’t going to be in a wheelchair a long time, but it would be nice to have it. She said that they could either get a new, shorter bathroom counter to make it easier to get by, or just have someone come in to ‘slice’ it (and then fix it) so it has more of an angle to make it so he can get himself in.
Andy came over today with his OT guy. It was a lot of work, and I wasn’t the one doing most of the work! lol He wasn’t coming to visit, he was coming to test out the house. Don got him down the stairs and andy was able to easily get himself into our bedroom, with the extra wide door. He wanted to see if Andy could get in and out of the waterbed, and he did. Sweet! He can just sleep in our bed and we don’t have to get a hospital bed. The waterbed would feel better on his back sleeping than a hard hospital bed, so it’s pretty cool that he can get in and out. The bathroom is another story. The wheelchair could fit thought the door going straight in(and said that there are special hinges to make that even easier) but he has to make a right turn to get in and that takes more room. It would work if I helped him, and I could do that, but the goal is for him to be as independent as possible, so we talked about possibly widening that doorway. If it were wide like our bedroom door it would work great, and Don said it didn’t look like it would be very hard to do that. He also talked about something instead of a lift for the entry. There is something, and I’m not sure how it would work, but it’s new and he likes it better. and it’s not connected to the house, so we could take it with us if we went other places. I really like that idea. I hadn’t really thought about going anywhere but here yet, so that would be nice. We had Andy get in and out of our van. He did good. Using a slide board he got in and out.
I made them sno cones and they left. It’s been a rough day for me and the kids. We are struggling. Charlie especially cried mostly all day. So hard to stay calm when he just follows me crying all day. But Aprill came to help me out. thanks ape!