AshLieAxAndIke

Welcome to Our Craziness!

November 16th November 16, 2007

Filed under: Uncategorized — ashlieaxandike @ 11:06 pm

Wednesday Andy had 2 doctor appt.s first with Dr. Bauman(the spine surgeon) at 11:30.  We waited till 1pm before we acutally saw him. An hour and a half! It was madness. We assume he was eating lunch-they actually told us before we went back to the room to wait longer that he only had one room that day-so if we were then in that one room, and still had to wait 45 minutes…..where was the dr.? So frustating-so rude. He looked at the x-rays and said that everything is looking good, then seemed to be done talking. Andy asked if he could get the backbrace off. Bauman thought about it and said he thinks that is fine and told us to come back sometime in Jan. After an hour and a half we saw him for about 2 minutes. So terribly rude. He was actually snacking on something out of his pocket the whole time too-very unprofessional.  But the good news is that Andy got the back brace off!!! yay!!! I took it off him in the car after the appt. 🙂

At 1:30 we had an appointment with Dr. Ryser. Of course we were late since we didn’t even see Bauman till 1pm, but susan, the workers comp nurse went ahead of us and let them know we were on our way(since we take longer getting places now).  That was actually a really good appt. He was helpful and stayed to talk for a long time. He was punctual and concerned. It really changed my opinion of him a lot. We talked about his pain level and how different it has been at home vs. the hospital. Why he was able to sit for hours on end at the hospital, but almost the second we got home it couldn’t sit for longer than a half hour without intense pain. Well, we finally figured out that on one of his nerve pain medicines the original instructions said to ‘take it every 8 hours for one week then every 12 hours as directed’, but I guess it was suppossed to be ‘every 12 hours if doing well’. So, since he isn’t doing well we are going back to every 12 hours and if that doesn’t do it we can actually go more than that. That has been an amazing difference in his pain level. It’s so nice-I can see this working well. So exciting! I can’t beleive I hadn’t thought of that one. I was really trying to figure out what the difference was at home and we finally found it! lol

He checked out his leg strength. His therapy now isn’t working that as much as rehab was. I want to work on that more at home. They stretch him a lot but don’t do the movement as much. We talked about his UTI’s and how he’s had one forever and we need to get this under control. He said it is weird that the other dr. gave him the antibiotic he did(nitrofurantn) because it’s not very good on UTI’s. He checked andy’s chart about the uti he had in the hospital and why they did IV antibiotics and found that it was because it was resistant to everything else and that is what they needed. He gave us a perscription but they are running cultures and he was a little worried we would be doing IV antibiotics. That would suck. I was supossed to call on that if I hadn’t heard by today, but of course I just remembered that right now…I’ll have to call Monday. Susan made an appointment for andy at a urologist that is familiar with SCI’s (spinal cord injury) in a few weeks so that will be good to get in there. Dr. ryser was concerned about the antibiotics and that maybe it coudl be a kidney stone in the bladder. He said they can harbor the bacteria and make it really hard to get rid of the UTI.

Andy has been having some chest swelling and tenderness. (I can’t tell you how much fun I’ve had making fun of him for that. lol) Dr.Ryser said it’s called gynocomastia and is usually caused by medicines you are taking, though he checked Andy’s list and called the hospital pharmacists and none of his sent up a red flag so they are doing a full metabolic workup and checking the testosterone levels. Poor boy. It’s reversible, but we have to figure out what’s causing it first. I keep telling him he can have more sympathy for little teenage girls and how sensitive that area can become. lol

We talked for awhile about the happenings with cath’ing and bowel care and… He was great and informative.

We then went down to the lab. Gave them a urine sample for the UTI and some blood for a metabolic workup, then to x-ray for them to check for kidney stones.  Andy did amazing the whole time. It was such a blessing that he wasn’t in a lot of pain like every other time we have gone out. This was even before we changed his nerve pain medicine!

Today was Alex’s birthday. I can’t beleive I have a 6 year old. Crazy! He was pretty cute. He loves the attention, but gets so shy about it. Love that boy!

I’m getting into more of a routine. I’m figuring out what I need to do and what I can cut out. We are using paper plates and everything to lessen the dishes. Dishes have always been my nemisis so that is something that is really helping. I’m loving the frozen meals I’ve been given-they are really coming in handy now. I’m so grateful to not have to be cooking and figuring out what to make. My mom is off track again and has been babysitting pretty much every day for me. 🙂 I hear she is planning on helping me organize my house more. wink, wink. (Maybe I need to stop asking her to babysit so she’ll actually have time to do her stuff so she can help me with my stuff. lol) And the best thing that has happened is that Andy is in less pain. It’s such a releif for both of us.

Pictures!

We went to the petting zoo:

Stryker

Alex

Halloween:

S is spiderman, C is a dog, and Ax is a skeleton(and acting the part)

Ax’s party

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November 10, 2007

Filed under: Uncategorized — ashlieaxandike @ 10:42 pm

Ah, I’ve gotten really bad at this!

Surgery went well. They did what they wanted and he is doing ok. They cleaned out the area and put in bone cement to hold the spot. In about 5 weeks they will go in and do the actual bone graft. Andy is not loving life right now. He is ALWAYS in pain and uncomfortable and that just wears on him. He’s been having a few rough days. It’s hard to go backwards with surgery and he just can’t get rid of that dang UTI. I have to call on monday-He needs stronger or longer antibiotics. So, he is feeling yucky and is down. Anyone wanna come play with him? He gets pretty bored.

On a good note, I had a night without my boys last night and went to breakfast with Aprill. 🙂 Then tonight we cleaned my kitchen and dining room and bathroom. I organized my desk/paid bills and I’m working on Laundry. My house feels so clean!

Andy and I are still working hard at being patient and loving. He has a hard time because he is just in pain all the time and that makes him impatient and I have a hard time cause I feel like I have a million things to do and he takes a long time to do anything. But, we are both trying as hard as we can and we will come out of this better. We will have a better relationship. I walk around biting my tongue all day, and I’m sure he does too, but it’s good for us to bite our tongues a bit more and talk a bit less I think. 🙂

We have an appt with Dr. Bauman next wednesday. Andy is really hoping to get rid of the back brace. He is really planning on that happening. Hopefully it does. That would be so nice to not have to worry about the boots OR the back brace. Next step-wheelchair. lol

 

November 6, 2007

Filed under: Uncategorized — ashlieaxandike @ 10:58 am

Surgery didn’t happen yesterday-it is going to be tomorrow, wednesday. We still haven’t heard what time though. Andy is nervous, but I don’t think it will be that big of a deal.

 

Thursday November 1, 2007

Filed under: Uncategorized — ashlieaxandike @ 7:55 pm

We are getting into more of a routine. I’m still needing babysitters every day. I have so many people that have offered to help, but it just takes so long calling. I’m not meaning to complain, but it’s just tiring week after week. It’s so nice having someone come and give Andy a shower. It’s working out really nicely-the same girl comes every time and I like that because she can get used to him and what he needs, etc. We don’t have to ‘train’ someone new each time. She is 18 and cute though-good thing I’m confident in my marriage! 🙂

Pick me up is great-except today they had down that his pick up to come home from therapy was a ‘will-call’ and not 1pm like we thought, so I ended up just going to get him. We will just have to be sure they have it right from now on.

My friend Tonya is great. I really owe her a lot-this is the second week she has come and cleaned my house. This week I wasn’t even home and she just came in and cleaned. For a second I had forgotten she was coming and couldn’t figure out what had happened to my house! Thanks Tonya!

Andy had a Dr. appt with Dr. Butterfield on Wednesday. It was a mess-I went to the wrong building. Susan, our workers comp. contact was meeting us there and I’m glad for that or else I wouldn’t have found the office. I was able to call her and we figured it out together. He had more x-rays then we met with butterfield. His sacrum is looking good and his heel is looking good. The legs don’t have as much bone growth as they need. So we are doing a bone graft. They typically do them from the hip, but his is going to be from the femur. It has less recovery time. It’s a 2-step process. He will go in Monday and they will clean out the area then put in antibiotic cement. In about 3 weeks he will go back in and do the actual bone graft. I’m not hardly even thinking about it right now. I sort of feel like I’m just surgery jaded-it’s just not a big deal anymore. I feel like it should be a bigger deal than it is. (ha-to be honest, I’m actually kinda excited about having a day or 2 with him back at the hospital!)

We asked about weight bearing-PT wanted to know if he could be 30% weight bearing so he can do the treadmill in the pool and butterfield said he could. Yay! That’s pretty cool. Andy asked about getting the back brace off and he said basically that it isn’t his thing, but he doesn’t see why not-but we will have to wait for our appt with bauman on the 14th. I asked about the boots and he said Andy is fine without them-at least till he starts walking. Yay! Yay! No more putting boots on and off! That will help Andy’s feel be desensitized faster. He can use his bare feet for transfers, his heel can touch the ground. It’s such a relief for me-I can’t wait till we can get rid of the back brace too!

Andy still has a uti-a few days after the last antibiotics it started coming back. it’s nasty. We will get rid of it soon.

Overall it’s getting better. It’s definetly getting more normal. It will be a lot easier when Andy starts hurting less and we can go out and be normal more. That will be great.